When Her Children Died Kay Knew 'Their' Charity Would Have to Begin at Home ; Paignton Mum Kay Parkinson Was a Vip at the House of Commons Last Week As a Pioneer in Her Work to Raise Awareness of Alstrom Syndrome, a Rare Genetic Disorder That Claimed the Lives of Both Her Children. Reporter Hannah Finch Met Her at Her Home in Southfield Avenue

Summary

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KAY PARKINSON has run a national charity from her living room for the past 13 years.

Next to the computer which allows her to make global contact are photographs of her children Matthew and Charlotte.

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When Her Children Died Kay Knew 'Their' Charity Would Have to Begin at Home ; Paignton Mum Kay Parkinson Was a Vip at the House of Commons Last Week As a Pioneer in Her Work to Raise Awareness of Alstrom Syndrome, a Rare Genetic Disorder That Claimed the Lives of Both Her Children. Reporter Hannah Finch Met Her at Her Home in Southfield Avenue

Both died of the rare genetic disease Alstrom syndrome when they were in their 20s.

All of Kay's efforts are to prevent similar deaths.

Matthew and Charlotte's condition went undiagnosed for years -- and their experience inspired Kay to set up Alstrom ...

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